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Your support makes all the difference.<\/strong><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\nRead more<\/span><\/svg><\/span><\/button><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/aside>\n<\/div>\n<\/div>\nAustralian influencer Erin Oudshoorn has announced the death of her six-year-old daughter, Lulu.<\/p>\n
Oudshoorn shared a devastating tribute to her daughter on the Instagram page where over the years, she chronicled Lulu\u2019s experience with a rare form of epilepsy called West syndrome.<\/p>\n
\u201cIt is with the most painful, shattered heart to share that our darling Lulu passed away peacefully in our arms yesterday, surrounded and profoundly loved on by all of her extended family,\u201d Oudshoorn wrote in a post shared Tuesday. The post\u2019s picture showed Oudshoorn and her husband holding little Lulu\u2019s hand.<\/p>\n
\u201cDave and I are just utterly broken. There simply aren\u2019t enough words to express our agony. Our baby girl is gone,\u201d her caption read.<\/p>\n
Oudshoorn previously shared how Lulu was diagnosed with West syndrome, also called infantile epileptic spasms syndrome, when she was just 11 months old. West syndrome is a form of epilepsy that develops in babies under two years old. Doctors told Oudshoorn that Lulu\u2019s condition was incurable, and said they did not believe her brain had formed properly in utero.<\/p>\n
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open image in gallery<\/span><\/button><\/p>\n<\/div>Influencer Erin Oudshoorn announced the death of her six-year-old daughter, Lulu, on Instagram (Instagram\/little.lulu.love)<\/span><\/figcaption><\/figure>\n<\/div>\n